Friday's moon over the hospital.
One month ago Friday, his kidneys shut down. This past Friday, we got him out of bed and into the cadillac chair. The new attending said they needed to treat him like a chronic vent patient and he might not come off the vent for anther month. One month ago Saturday, was that awful night. This Saturday, they had the vent pressure control turned off and on cpap mode. He tolerated it for 6 hours. One month ago Sunday, they didn't think he was going make it through the day. This Sunday, they had him off the vent and on a mask to trach, for 9 hrs. He did so well, he didn't want to go back on the vent for bedtime. They promised to put him back on the mask at 5am.
He's pretty much off the vent!!!! The nurse said he was going to try to get an order for a talking valve for his trach for when he's on just the mask to trach. D's eyes lit up at the thought of that. You know I'm going to be pushing for that in the morning. (Which is when you'll be reading this.) I wanted to do back flips and cart wheels down the hall. With my luck, I would fall and break something, on me.
Just a short update. My brain has been fried. Other stuff going on. I've been zoning out with Cafe World on FB just get my mind to stop thinking for awhile.
The other thing that's in the works, is the social worker put in an application for the state to pay me to be his caregiver. It takes like thirty days to go through. I'm worried about how to pay the phone/internet bill this month. A church begrudgingly paid the electric bill. They weren't as friendly as the chapter in Oro Valley a year and half ago. The manager told me not to worry about the rent while D is sick. That we didn't need that worry.
Short and great news post. I'm just going through a giant fibro-flare. I was so exhausted Saturday, D even told me to go home early. I must have looked like hell, usually he wants me to stay longer when it's for me to go.
Saturday's moon over our complex.
15 comments:
Oh I'm so happy for you guys. That is all such amazing news. It will be great to have D really back and talking to you again. I think a really positive sign is his concern for you. It shows that his illness isn't all pervasive any more. He has spare energy and brain power to think about you.
Wonderful news! I'm so pleased for you.
Hi. I have been following all your ups and downs and I'm glad they seem to being on the up. I would like to help a little so if you find that you are struggling to pay the phone/internet bill I would like to help with a little donation. The internet is your lifeline at the moment and it would be a wrench to be without it. Let me know and I could Paypal you a little to help. Hope all your bunnies/birds/cats are well. Joolz.
I was hoping your absence here was good news! Glad to hear things are looking better. At this rate, it won't be long until they remove the tracheostomy tube altogether. He should be thrilled with a Passy Muir valve and the ability it gives him to speak.
Glad your this moon brought you a break.
That's so exciting. I'm very happy for you.
This is such awesome news! Woo!
Such wonderful news - I'm so pleased.
How wonderful!
Your post made my day : ) Such great news. I hope D continues to make progress with great speed and that soon this will all be a bad memory.
That is such WONDERFUL news. I'm so tickled!
Denise.. My D and I are both thrilled to hear that your D is on the upswing! What a relief! My D has escaped death 3 times.. a strangulated hernia when he was 6, getting shot in Vietnam, shattering his femur, and then 2 years ago June colon cancer.
So.. when D is all better he'll definitely have some war stories to tell on this one. ::whew:;
Email me your address and we'll send a little something too.
Hugs, Teresa
I am literally smiling with joy to read this post. I didn't get a chance to earlier as my in laws were in town but I was still thinking of you guys. I'm so happy that he's getting better. I can't believe it's been a month, but then on the other hand, I can't believe it hasn't been longer. I'm sure it seems like years to you. Tell him we're all so happy for the great news!
So happy to be reading about some truly positive news for him. Hoping the social workers idea pans out for you.
That is a big relief. I hope his recovery will go even faster now. Best of luck to both of you.
Fab news!!!
Hope your flare up eases soon {{big healing hugs}}
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